COVID-19 Factsheet – Getting Life Saving Medical Care in Hospitals during the COVID-19 Pandemic – PLAIN LANGUAGE VERSION
April 19, 2021
This is a plain language version of “Accessing Critical Care in Hospitals during the COVID-19 Pandemic
This Factsheet gives information about the law. This information is for people with disabilities who may need critical medical care in hospitals in Ontario during the COVID-19 pandemic.
The information in this Factsheet is about laws and policies in Ontario. This legal information may not be for you if you live outside of Ontario.
What this Factsheet is about
This Factsheet gives important information about getting critical care in hospitals during the COVID-19 pandemic in Ontario.
Because of the COVID-19 pandemic, many people in Ontario need healthcare in hospitals. Many of those people need what we call critical care which is life-saving care that people get in hospitals.
If there are too many people who need critical care, there may not be enough hospital beds, doctors, nurses, and other equipment to care for everyone. Whether people are sick with COVID-19 or with something else, this means that not everyone will be able to get critical life-saving care.
The Government of Ontario is working on a plan for doctors to decide who will get life-saving critical care and who will not if Ontario hospitals no longer have enough resources to provide everyone with critical care that needs it. The Government of Ontario has not yet said that doctors need to start making these decisions.
It is important to know as much information as possible to be prepared in case you need to go to the hospital. Some of the information is changing very quickly and some of the information we do not yet know. This Factsheet will share the information that we know, and give some tips if you need to go to the hospital.
Remember – If you need more information about YOUR SITUATION going to the hospital, call ARCH.
What We Know
If the Government says that doctors have to make decisions about who gets critical care and who does not get critical care, this is called Triage.
To help the doctors decide who needs critical care the most, the Government wanted doctors to follow rules.
The Government asked a group of people, called the Bioethics Table, to make rules about how doctors decide who gets critical health care in these situations.
There have been lots of different documents developed.
The newest Triage document we know about that tells doctors how to make these decisions is called the Adult Critical Care Clinical Emergency Standard of Care for Major Surge, from January 13, 2021. You can find this document by going to this link:
You may want to ask someone who helps you with your health decisions to talk about this.
We know these rules might come into place in the future. They are not in place right now.
Human rights advocates argue that these tools don’t treat people with disabilities fairly.
Also, the tools are a problem because they were not created with people with disabilities.
For more information about ARCH’s work on advocating for tools that treat persons with disabilities fairly, go to: https://archdisabilitylaw.ca/covid/
Information We Don’t Know Yet
- We do not know when the Government will tell the doctors to use these tools.
- We do not know which tool the Government will tell the doctors to use.
- We do not know if the Bioethics Table or the Government has made new versions of these tools.
- We do not know if you will have a say in whether you will get critical care if you have to go to the hospital.
As a person with a disability, you have a right to equal access to health care. Ontario law says that people with disabilities have a right to accessible health care services, unless it would cause undue hardship. Undue hardship means that the accommodation creates a real risk to health and safety.
Each person with a disability will need different accommodations to make hospital services accessible to them. Types of accommodations may include:
- support person, attendant or communication assistant;
- an interpreter;
- large print.
Hospital visitation bans may prevent you from having your support person come to the hospital with you. If the hospital you are going to has a visitation ban, ask for an exemption to the visitation ban if you need support.
For more information about getting accommodations when you are in the hospital during the COVID-19 pandemic, you can review ARCH’s Advocacy Toolkit called “Advocating for Your Support Person, Attendant or Communication Assistant to be with You in Hospital During the COVID-19 Pandemic”, by going to this link:
For the plain language version, go to this link: https://archdisabilitylaw.ca/resource/advocating-for-your-support-person-or-attendant-to-be-with-you-in-hospital-during-the-covid-19-pandemic/
Consent to health care treatment and decision-making
Under a law called the Health Care Consent Act, you have the right to consent to the type of care you receive at the hospital, including withdrawal of critical care.
If you are not able to make your own health care decisions in the hospital, then Ontario law says that another person will make those decisions for you. This other person could be a family member, your Power of Attorney for Personal Care or a Guardian of the Person.
If you or your family disagrees with your doctor’s plan of care, your doctor must apply to a tribunal called the Consent and Capacity Board for direction on how to proceed.
What does this mean for me? If you are receiving critical care at the hospital and your doctor wants to take away your critical care:
- Your decision-maker will need to consent to have the care removed;
- If they do not consent, then the doctor can make an application to the Consent and Capacity Board to ask for direction about whether the doctor can remove your care; and
- The Consent and Capacity Board may decide that your care should be removed.
If your doctor does not have enough critical care resources to give you, you do not have a right to demand that you get care.
Moving you to a different hospital
If you are at the hospital, it is possible that you may be moved to another hospital. If there is not enough critical care for all the patients, the hospital is allowed to move you to a different hospital. The Government has made new rules in response to COVID-19 that allows the hospital to do this without your consent or the consent of your decision-maker. You can view the new law called an Order in Council by going to this link:
What does this mean for me? The new rules say that the doctor should try to speak with you, your support person or decision-maker before moving you to a different hospital, but they are not required to do this. It is a good idea for you to keep the contact information of your support person or decision-maker close by.
If you need to go to the hospital because you are sick and need critical care, here are some things you can do. You may need to ask for help or support to get some of these things done.
If possible, get prepared. Before going to hospital or as soon as you can:
- Write a letter or record a video about your wishes for care. This will help your family member, your Power of Attorney for Personal Care or a Guardian of the Person convey your wishes when needed if you are unable to do so.
- Write your own letter or record your own video for supports. Explain that you have disabilities and you need accommodations and explain what those accommodations are. Explain what they will do to help you get health care services from the hospital, or why you will not be able to get health care services without them
- Get a letter from your family doctor or specialist. The letter should say what disabilities you have, what accommodations you need while you are in hospital, and why these accommodations are absolutely necessary.
- If possible, make a few copies of the letter from your doctor and your own letter or video. If you can, get them laminated or put them into a plastic sleeve or another covering. If you have a smart phone or tablet, you could also save the letters there. You may want to give a copy to your support person, attendant or communication assistant, if you have one.
- Many organizations have developed forms to give information about a person’s support needs to hospitals. You can fill out the form. Or you can look at the form and decide which things in it are important and relevant for you. You can use the form to help you write your own letter or make your own video. Here are some examples of forms:
- “Communication Passport” developed by Communication Disabilities Access Canada: https://www.cdacanada.com/wp-content/uploads/2020/03/COVID-Communication-Toolkit-1.pdf
- “COVID-19 Hospital Transfer Form” developed by Surrey Place and the Centre for Addiction and Mental Health for caregivers of people with intellectual and developmental disabilities: https://ddprimarycare.surreyplace.ca/
- Pack a small emergency bag with things that you might need while you are in hospital. Leave the bag near your front door. Make sure the letters and/or video are inside. You could also include a list of important contact information you might need, as well as a photo of yourself.
When you are at the hospital
- Share your letters and/or video with your doctor and nurses so that they know about your wishes.
- If you need a support person with you in the hospital, ask for an exemption to the visitation ban. Tell the hospital staff that you need your support person, attendant or communication assistant to be with you. Show them the letter from your doctor and the letter or video you created. Explain that your support person, attendant or communication assistant is not a visitor, they are an essential accommodation for your disability.
- If the hospital staff refuse, ask to speak with the nurse or doctor who is in charge of the department or floor you are on.
- If the answer is still no, ask to speak with the hospital’s accessibility coordinator, patient relations coordinator, patient ombudsman, and/or patient advocate.
- Keep the letter from your doctor and the letter or video you created close by. If the hospital changes its visitation ban rules or if you get moved from one department or floor to another, you may need to advocate again to have your support person, attendant or communication assistant go with you.
- Confirm that the contact information for your support person, family member, and/or substitute decision-maker is made available to hospital staff. It is important that they have accurate contact information if you will be transferred to a different hospital.
- If you are a person with a disability living in Ontario and you need legal advice, you can call ARCH for free, confidential summary legal advice legal information, and referrals.
- Telephone: 416-482-8255
- Tel. Toll-free: 1-866-482-2724
- Email: [email protected]
* DISCLAIMER: The information provided in these materials is not intended to be legal advice. Please contact a lawyer if you have an issue you need help with about getting life-saving medical care during COVID-19. It is important to know the law may have changed from the time this was written. This information is current as of April 19, 2021.
Please note that the information in this Factsheet does not apply to all situations. A person’s accommodation needs may vary over time and at different points in the day. Always ask the person with the disability how to most appropriately accommodate them.
© ARCH Disability Law Centre, 2021